Game Changer

Paul  Frase and Alison Rockett had everything—Paul was an NFL defensive lineman; Alison was an assistant manager for Guns N’ Roses and a personal assistant to fashion design mogul Max Azria, founder of BCG.

Upon receiving the news that they would be parents, they celebrated the perfect addition to their fairy tale life. But that life threatened to come crashing down with the discovery that their beautiful son, Joshua, was born with myotubular myopathy, a rare muscle disorder—a death sentence by his second birthday.

 This news would have rendered them helpless to anyone else, but Paul and Alison were determined to fight the inevitable—and win. From handling Joshua’s 24/7 care to starting a foundation that would find a medical breakthrough to receiving FDA human trial status, the Frases are living proof that anything is possible with determination and faith. 

Game Changer chronicles the dramatic and inspiring twenty-year journey of battling for their son’s life, beating the odds, and working to ensure that no other child has to suffer from a rare muscle disorder again.